Celine Dion claims she 'almost' DIED amid stiff person syndrome battle - as she opens up to Hoda Kotb in upcoming interview

Celine Dion recently revealed she very nearly lost her life amid her battle with stiff person syndrome.

The 56-year-old singer is doing 'much better' now but 'almost died' at one point, Hoda Kotb shared while teasing an upcoming episode of Today With Hoda & Jenna on Thursday.

Reflecting on what she learned from Dion during their interview, Kotb, 59, added: 'It was a scary time.'

Earlier in the day, the trailer for the vocalist's upcoming documentary was released and brought fans to tears as they watched Dion open up about her heartbreaking battle with stiff person syndrome.

And just weeks earlier, Dion said she was 'determined' to get back to performing on stage and singing again — which Kotb said she had the privilege of hearing during their candid conversation, adding that she sounded 'incredible.'

Celine Dion recently revealed she very nearly lost her life amid her battle with stiff person syndrome. The 56-year-old singer is doing 'much better' now but 'almost died' at one point, Hoda Kotb shared while teasing an upcoming episode of Today With Hoda & Jenna on Thursday; seen in February

Celine Dion recently revealed she very nearly lost her life amid her battle with stiff person syndrome. The 56-year-old singer is doing 'much better' now but 'almost died' at one point, Hoda Kotb shared while teasing an upcoming episode of Today With Hoda & Jenna on Thursday; seen in February

Reflecting on what she learned from Dion during their interview, Kotb, 59, added: 'It was a scary time.' She also said she had the privilege of hearing Dion sing, adding that she sounded 'incredible'

Reflecting on what she learned from Dion during their interview, Kotb, 59, added: 'It was a scary time.' She also said she had the privilege of hearing Dion sing, adding that she sounded 'incredible'

[video_shortcode_video_html_5 src="https://videos.dailymail.co.uk/video/mol/2024/05/23/7159259054201290098/1024x576_MP4_7159259054201290098.mp4" itemprop="image" content="https://videos.dailymail.co.uk/video/mol/2024/05/23/7159259054201290098/1024x576_MP4_7159259054201290098.mp4" data-src="https://videos.dailymail.co.uk/video/mol/2024/05/23/7159259054201290098/1024x576_MP4_7159259054201290098.mp4"]

According to the Cleveland Clinic, stiff person syndrome is a rare autoimmune neurological disorder that causes muscle stiffness and painful spasms.

Dion revealed she was diagnosed with the disorder nearly two years ago.

'She was diagnosed with a terrible disease, and at one point, she wondered if she was going to make it, whether she was going to live through it,' Kotb shared.

'A lot of people are wondering what happened [and] what was wrong,' she added.

Kotb also revealed that Dion told her about how the disorder affected her voice and touched on the 'possibility of a comeback.'

'We've missed her and it was a very emotional interview,' she recalled. 'We'll see where she is on her journey of coming back, but I know people are cheering her on.'

Dion's appearance on Today with Hoda & Jenna will air during the upcoming June 11 episode.

Earlier on the same day, Amazon Prime released an emotional, raw trailer for the singer's upcoming documentary I Am: Celine Dion.

Dion revealed she was diagnosed with the disorder nearly two years ago. 'She was diagnosed with a terrible disease, and at one point, she wondered if she was going to make it, whether she was going to live through it,' Kotb shared about the hitmaker

Dion revealed she was diagnosed with the disorder nearly two years ago. 'She was diagnosed with a terrible disease, and at one point, she wondered if she was going to make it, whether she was going to live through it,' Kotb shared about the hitmaker

Earlier on the same day, Amazon Prime released an emotional, raw trailer for the singer's upcoming documentary I Am: Celine Dion. In the clip, Dion broke down into tears as she admitted that the degenerative disease has affected her ability to perform; seen in September 2019

Earlier on the same day, Amazon Prime released an emotional, raw trailer for the singer's upcoming documentary I Am: Celine Dion. In the clip, Dion broke down into tears as she admitted that the degenerative disease has affected her ability to perform; seen in September 2019

In the clip, Dion broke down into tears as she admitted that the degenerative disease has affected her ability to perform. Towards the end of the trailer, Dion promised her fans that she will do anything to save her voice, which she called 'the conductor of my life'

In the clip, Dion broke down into tears as she admitted that the degenerative disease has affected her ability to perform. Towards the end of the trailer, Dion promised her fans that she will do anything to save her voice, which she called 'the conductor of my life'

I Am: Celine Dion will premiere on Amazon Prime and be available to stream on June 25. Dion's appearance on Today with Hoda & Jenna will air during the upcoming June 11 episode

I Am: Celine Dion will premiere on Amazon Prime and be available to stream on June 25. Dion's appearance on Today with Hoda & Jenna will air during the upcoming June 11 episode

[video_shortcode_video_html_5 src="https://videos.dailymail.co.uk/video/mol/2024/05/23/7159259054201290098/1024x576_MP4_7159259054201290098.mp4" itemprop="image" content="https://videos.dailymail.co.uk/video/mol/2024/05/23/7159259054201290098/1024x576_MP4_7159259054201290098.mp4" data-src="https://videos.dailymail.co.uk/video/mol/2024/05/23/7159259054201290098/1024x576_MP4_7159259054201290098.mp4"]

In the clip, Dion broke down into tears as she admitted that the degenerative disease has affected her ability to perform.

Towards the end of the trailer, Dion promised her fans that she will do anything to save her voice, which she called 'the conductor of my life.'

'When your voice brings you joy, you're the best of yourself,' she said. 'I need my instrument.

'I've been diagnosed with a very rare neurological disorder and I wasn't ready to say anything before, but I'm ready now,' she added. 'I see my life and i love every piece of it.'

About the possibility of a comeback, she said: 'I'm working hard every day, but I have to admit it's a struggle. I miss it so much. The people... I miss them.

At the end of the trailer, Dion stated: 'If I can't run I'll walk. If I can't walk, I'll crawl. But I won't stop, she won't stop.'

I Am: Celine Dion will premiere on Amazon Prime and be available to stream on June 25.

OTHER NEWS

20 minutes ago

China rover returns historic samples from far side of the moon — and they may contain secrets to Earth's deep past

20 minutes ago

2024 Volkswagen Golf R brings power boost and new tech

20 minutes ago

Julian Assange Pleads Guilty to Espionage, Securing His Freedom

20 minutes ago

Estimated declaration times of General Election results: Alphabetical list

20 minutes ago

Farage called out over comments

20 minutes ago

£1.4bn worth of PPE from single firm was destroyed or written off

20 minutes ago

Lol: Woman drank alcohol from her handbag at fancy restaurant, Mzansi laughs

20 minutes ago

Woman Not 'Satisfied' With Carpet Job—Then Cleaner Shared the Before Photo

24 minutes ago

Jacksonville approves $1.4B renovation of Jaguars stadium

24 minutes ago

Guatemala appeals court revokes judge's order to give house arrest to renowned journalist José Rubén Zamora

24 minutes ago

Suspected Yemen Houthi attack targets vessel in waters farther away than many previous assaults

24 minutes ago

Guatemalan appeals court revokes order to grant house arrest to journalist José Rubén Zamora

24 minutes ago

Valley View tornado survivor continues to heal after suffering broken ribs, a punctured lung and blood clot

25 minutes ago

Canada beats Peru 1-0 for first ever Copa America win

25 minutes ago

Woman found shot to death in Illinois farm field finally identified after nearly 50 years

25 minutes ago

Kenya Moore Breaks Her Silence After ‘RHOA’ Season 16 Exit

25 minutes ago

A skydiving accident left him a double amputee. Now he’s a snowboarding champion

28 minutes ago

Video: Michael Phelps says false doping accusations eroded 'a lifetime of mental health growth' - and now regulators turning a blind eye to accusations of China doing just that

28 minutes ago

Video: Nigel Farage makes thinly veiled swipe after being booed by crowd as he wins best news presenter at the TRIC Awards

29 minutes ago

Newly sworn-in ANC MP Zizi Kodwa: State’s case against me is ‘nonexistent’

29 minutes ago

John 5 Responds to Accusations of Guitar Miming With Motley Crue

29 minutes ago

Despite political uncertainty, Cape Town's office rental market thrives

29 minutes ago

Labor’s renewables-only approach ‘can’t’ stabilise Australia’s energy grid

29 minutes ago

Medihelp reports strong growth, more younger members join

29 minutes ago

Never (really) too young to have a will

29 minutes ago

Exciting call for nominations for the 2024 AWIEF Awards

29 minutes ago

Blockchain vs Crypto

29 minutes ago

Texas A&M beats Florida 6-0 to make CWS finals for 1st time as Gators shut out 1st time in 2 years

29 minutes ago

Generative AI sent to the dock in RIAA ‘BBL Drizzy’ legal action

29 minutes ago

The Matric mandate: a barrier to employment for South African youth

29 minutes ago

One of 2024's biggest new anime series will be shown in cinemas – one month before its Netflix and Crunchyroll release

29 minutes ago

Money Show host Bruce Whitfield to leave Primedia

29 minutes ago

Great Wolf Lodge water park in Webster will open earlier than expected, according to website

29 minutes ago

Employers' role in health and wellness to promote employee well-being, by Medshield

29 minutes ago

How environmental toxins and pollution affect our health, by Medshield

29 minutes ago

LA broadcast TV legend Tom Van Amburg — who gave Regis Philbin his daytime start — dead at 83

29 minutes ago

Video: Shocking moment thugs armed with Rambo knives fight in the middle of the day on residential London street

29 minutes ago

Everything you need to know about changes coming July 1

29 minutes ago

Coalition slams Prime Minister for not expelling rogue Labor Senator Fatima Payman

29 minutes ago

Former Fremantle Dockers and Brisbane Lions star Lachie Neale and wife Julie Neale announce baby news