The Question About My Feeding Tube That Bothers Me Most

the latest tech news, global tech news daily, tech news today, startups, usa tech, asia tech, china tech, eu tech, global tech, in-depth electronics reviews, 24h tech news, 24h tech news, top mobile apps, tech news daily, gaming hardware, big tech news, useful technology tips, expert interviews, reporting on the business of technology, venture capital funding, programing language

The Question About My Feeding Tube That Bothers Me Most
© The Mighty Woman hands holding blank plate on wooden table.

I’ve been a “tubie” (as the cool kids call it) for about five months now. It’s been an interesting adjustment, and just like any other chronic medical situation, it takes some getting used to. I’ve had to learn to find ways of distracting myself so I don’t crave food. While everyone else is on their third slice of pepperoni lovers pizza, I’m trying to breathe through my mouth so the delicious smell of pizza doesn’t make me cry (since I can’t eat it). While most are sitting down at the table to enjoy dinner or are spending time cooking a meal with their family, I’m filling up my pump bag and starting my afternoon/evening feed. I used to be able to eat a little of whatever my family was eating, but I was recently told to stop that as well because my system isn’t handling solid food very well anymore.

the latest tech news, global tech news daily, tech news today, startups, usa tech, asia tech, china tech, eu tech, global tech, in-depth electronics reviews, 24h tech news, 24h tech news, top mobile apps, tech news daily, gaming hardware, big tech news, useful technology tips, expert interviews, reporting on the business of technology, venture capital funding, programing language

There is one question I get asked fairly often that I can honestly say gives me a twinge of anger: “So how much longer do you need to have that tube?” Or, some ask the same question worded another way: “So how much longer until you can eat again?” The answer to this question is both simple and complicated. While I cannot predict what the future holds for my health, I can say that as it currently stands, I’ll likely never be free of the feeding tube. If I am, it will probably be because I’ve transitioned to TPN instead. I’ll likely be limited in what and how much I eat for the rest of my life.

This might seem like a perfectly innocuous question, but there are a few reasons why it rubs me the wrong way. For starters, I don’t really know the exact answer to that question, so it’s difficult to answer. It would be like asking a recovering accident victim when they’ll be able to walk again, or asking how long they’ll need their wheelchair. There is no concrete answer for this, and it brings me to my next point; it’s insensitive. Being asked this question is just another reminder that my body feels broken. I would love to be able to eat like a “normal” person, but I can’t. Being asked when I’ll be free of my tube is just pointing out to me that I’ll probably never be able to eat normally again. When I spend most of my day trying to avoid thinking about food and eating, this is definitely not a topic I want to be brought up.

Global Tech News Daily

The next reason this question is inappropriate is that it insinuates that my quality of life or my worth is somehow diminished by my tube. The fact is, my life is made possible because of my tube. If I didn’t have my tube feeds, I would be quite literally starving to death. My tube feeds enable me to be healthy and have the energy to work and have fun with my children. I’m still at the doctor’s office more than the average person, and I still experience frequent hospital admissions, but I would be wasting away to nothing without my tube, and on my way to an early grave.

Maybe people ask me this question because they couldn’t imagine having to deal with this situation if they were in my shoes. I get that; I get that this looks really hard. Fact is, it is. But, I’ve learned (and am still learning) how to make adjustments in order to accommodate the changes I’ve had to make. I’ve had to learn to be strong, even when I feel like I’m about to break. While this might never be a situation that you personally need to deal with, it’s a situation that I’ve learned to live with.

You might be asking yourself, “Well, what should I say?” This will vary from person to person, but in my specific case, I would prefer people say nothing. But, if you really want to ask something, I do genuinely appreciate a “Do you need anything?” check-in from time to time. I’ll probably say no 99% of the time when people ask, but I do appreciate the gesture, and every once in a while if I’m in a bad flare-up, I might take someone up on that offer. I just want to be treated like any other average person. I don’t need or want pity. Thanks to the medical interventions that I’ve been blessed with, I’m empowered to live a normal life, and at the end of the day, that’s all that should matter. 

News Related

OTHER NEWS

Third Ebola patient dies in DR Congo

The third Ebola patient in northwest Democratic Republic of Congo has died, the World Health Organisation says, the latest fatality in an outbreak first reported last month. The 48-year-old man ... Read more »

UK Labour leader probed on 'virus breach'

UK police say they will investigate opposition leader Keir Starmer over a potential breach of COVID-19 lockdown rules in 2021 after receiving significant new information, delivering an embarrassing blow to ... Read more »

Beijing nervous, COVID cases not dropping

Beijing residents are fretting over tightening COVID-19 curbs in its biggest district and dozens of new cases reported daily as China's leaders reiterated their resolve to battle the virus and ... Read more »

US health authorities warn of clot peril with Johnson & Johnson COVID vaccine

Blood clots have ended high hopes for Johnson & Johnson’s one-shot vaccine vaccine. Photo: Getty Live US regulators are strictly limiting who can receive Johnson & Johnson’s COVID-19 vaccine due ... Read more »

Far West hospitality venues feeling impacts of COVID on staffing numbers and work

Far west hospitality venues say they are running on bare minimum staffing numbers as COVID impacts their operations. Key points: A number of local venues are considering, or have reduced, their opening ... Read more »

COVID in WA: Third dose vaccine milestone reached as daily cases fall below 10,000

WA has marked a long-awaited vaccine milestone, a day after COVID cases reached a record peak. The Health Department has reported the third dose vaccination rate has reached 80.1 per ... Read more »

FDA restricts use of Johnson & Johnson COVID vaccine due to blood clot risk

The Food and Drug Administration put rigid limits on who can receive Johnson & Johnson’s one-dose COVID-19 vaccine on Thursday, saying the vaccine should only be given to people who ... Read more »

WHO says true pandemic death toll is 15 million — not six million

Live Nearly 15 million people were killed either by coronavirus or by its impact on overwhelmed health systems during the first two years of the pandemic,  the World Health Organisation estimates. ... Read more »

WHO links 14.9mln deaths to COVID-19

Nearly 15 million people were killed either by coronavirus or by its impact on overwhelmed health systems during the first two years of the pandemic, the World Health Organisation estimates. ... Read more »

Eleven African countries in 5th COVID wave

COVID-19 infections are on the rise in Africa but are becoming less and less fatal, an Africa CDC official says. Countries experiencing their fifth wave of cases are seeing tallies ... Read more »

Omicron 'just as severe', US study says

The Omicron variant of COVID-19 is intrinsically as severe as previous variants, unlike assumptions made in previous studies that it was more transmissible but less severe, a large study in ... Read more »

Elderly man in Shanghai wakes up in a hearse on the way to the morgue after wrongly being declared dead

COVID has taken a huge toll on the elderly all over the world. But it appears the authorities in China may have been a little over-zealous in the case of ... Read more »

‘No end in sight’: In Beijing, fears of Shanghai-style lockdown

Officials in Chinese capital have designated 518 coronavirus outbreak sites amid growing fears of a city-wide lockdown. Read more »

COVID in WA: State reports more than 10,000 daily cases for first time in the coronavirus pandemic

WA has reported more than 10,000 daily cases of COVID for the first time in the pandemic, just days after the mask mandate and other restrictions were dropped. WA Health ... Read more »

Western Australia records more than 10,000 new Covid-19 cases

Western Australia has recorded 10,000 new cases of Covid-19 overnight, surpassing the original prediction for the peak of the Omicron wave. The spike in infections comes less than one week ... Read more »

NSW push vaccines with flu on the rise

Cases of flu in NSW have more than doubled in recent weeks, leading to a spike of hospitalisations. Chief Health Officer Kerry Chant said there were more than 1024 cases ... Read more »

Victoria becomes the first state to record over 3000 Covid deaths

Victoria has hit an unwanted Covid milestone after becoming the first Australian jurisdiction to record over 3000 deaths due to the virus. The Victorian Department of Health reported 14 new ... Read more »

IMAGE: Pilot program offers free flu vaccines

IMAGE: Pilot program offers free flu vaccines News Video Read more »

Can I get the flu jab if I've just had COVID-19? What you need to know about winter with both viruses

Flu season has officially arrived, with Australia already seeing thousands of cases of the virus. Both COVID-19 and influenza are now circulating in the community, and health authorities are pleading with people to ... Read more »

US Secretary of State Blinken has COVID-19

The US State Department says Secretary of State Antony Blinken has tested positive for COVID-19 after attending the White House Correspondents' Dinner and related events over the weekend. Spokesman Ned ... Read more »

Virus cases dip except in Americas, Africa

The World Health Organisation says the number of newly reported coronavirus cases and deaths globally has continued to fall in the last week, continuing a decline that first began in ... Read more »

COVID in WA: State tallies record 9782 daily coronavirus cases

WA has reported a record 9782 daily COVID infections less than a week after dropping the majority of restrictions designed to contain the virus. However, the number of people in ... Read more »

SA to change virus management

South Australia will change how it handles the ongoing COVID-19 pandemic as it prepares to end the state's emergency management declaration. The new Labor government has introduced legislation to amend ... Read more »

Three new Omicron subvariants in Australia

Three new Omicron subvariants have reached Australia and health authorities say people who contract the virus should wait three months before getting their next COVID-19 vaccination. Associate Professor Stuart Turville ... Read more »

Outcome on COVID vaccine IP waiver: WTO

The four main parties to negotiations on an intellectual property waiver for COVID-19 vaccines have prepared an “outcome document” for approval by the broader membership. World Trade Organisation director-general Ngozi ... Read more »

Beijing tests, Shanghai eases some curbs

Some of Shanghai's 25 million people have managed to get out for short walks and shopping after enduring more than a month under a COVID-19 lockdown while China's capital Beijing ... Read more »

Regional post-COVID mental health crisis

The demand for regional mental health services has spiked since the coronavirus pandemic, forcing many psychologists to close their books because they can't keep up. It's been described as a ... Read more »

Beijing preparing for major COVID-19 spike

Beijing is preparing new hospital facilities to deal with a spike in COVID-19 cases, even though the numbers of new cases remain low. A 1000-bed hospital at Xiaotangshan in the ... Read more »

Experts warn of possible renewed flu spike

Health experts are warning of a renewed spread of seasonal flu after two years of COVID-19 restrictions left fertile ground for the potentially deadly bug to spread. The number of ... Read more »

Hong Kong to further ease COVID curbs

Hong Kong will further ease COVID-19 restrictions, allowing bars to open until 2am and doubling the number of diners permitted at a table, as cases in the global financial hub ... Read more »

ACT to drop COVID-19 vaccine mandates for healthcare workers, teachers in Canberra

Workers in healthcare and education settings across Canberra will soon no longer be required to be vaccinated against COVID-19, the ACT Health Minister has announced. Key points: Workers in disability and ... Read more »

Victoria and NSW record almost 20,000 Covid cases in 24 hours

Victoria and NSW have experienced big increases in their daily Covid numbers, with the states recording more than 19,000 new cases combined. NSW recorded 9656 infections in the 24 hours ... Read more »

COVID in WA: Infections track up with one historical death reported

Reported COVID infections tracked back up on Tuesday to 7929 with small increases also recorded in the number of people in hospital and ICU. One historical death was also reported, ... Read more »

COVID variants detected in SA for first time as health authorities also prepare for flu

South Australia's public health chief has issued a warning to parents about reduced flu immunity ahead of winter, as new COVID variants are detected in the state. Key points: SA has recorded its ... Read more »

COVID-19, flu winter resurgence predicted

Authorities are warning the easing of COVID-19 restrictions will see a spike in transmissions as well as a resurgence of flu this winter. Acting Australian Chief Medical Officer Sonya Bennett ... Read more »

Coronavirus Watch: Catch COVID this summer? Don't expect an Airbnb refund

If you catch COVID-19 ahead of your summer vacation, don’t expect an Airbnb refund. More than two years after the start of the COVID-19 pandemic, Airbnb says it will no ... Read more »

COVID setback for Shanghai, Beijing braces

China's commercial capital of Shanghai has been dealt a blow as authorities reported 58 new COVID-19 cases outside quarantine areas, while Beijing pressed on with testing millions of its people ... Read more »

Tourists return as NZ pandemic rules ease

New Zealand has welcomed back tourists from the US, Canada, Britain, Japan and more than 50 other countries for the first time in more than two years after dropping most ... Read more »

'Unprecedented' code white for three days as Mount Gambier hospital battles staffing shortages

South Australia's largest regional hospital was placed under a code white rating for three days last week, in what is understood to be a first for the facility.  Key points: ... Read more »

COVID in WA: Elective surgery opens up as virus cases remain steady

WA has recorded 5847 new COVID cases and zero deaths to 8pm on Sunday night, as private hospitals resume taking bookings for elective surgery for non-essential procedures. The numbers are ... Read more »